We are waiting again for test results. One test leads to another test in the investigation of the Protein C deficiency. Nico had an ultrasound this morning and results were not quite what we hoped. The fluid has increased slightly in his brain. He will have another ultrasound by Monday to check it again. Please pray with us that the fluid will drain on its own and be absorbed into his body. On a good note, Nico's platelet counts are up to 245,000 which is in the normal range now.
In the last 24 hours Nico has been seen by an ophthalmologist, a hematologist and a developmental specialist. We are so glad he is at Texas Children's where all these people are available so quickly. Not only are they available to see him, but then they make themselves available to come by and explain everything to us, answering any questions we have. The developmental specialist spent almost an hour with me today.
The ophthalmologist said Nico has no clots or abnormalities in his retinas. The hematologist is working to figure out the cause of the Protein C deficiency and they started him on Protein C concentrate infusions yesterday at 5pm. He will get them every 12 hours for a while and they will keep testing his levels until they are able to figure out the dosage that he needs. The developmental specialist had a lot of encouraging things to say. She says from a clinical stand point she cannot tell that any brain hemorrhaging occurred in Nico. He is vocalizing well, has good motor skills in moving his arms, legs and fingers and seems socially interested in what is going on around him. She is recommending that he does receive care from early childhood intervention, a state program that would allow us to have in-home evaluations and free therapy up until age 3. She wants us to have every resource available to us, should we need it down the road.