Nico is doing well. He had a car seat test today, where he has to sit in it for an hour while they watch his vitals to make sure he is breathing well enough. He passed. Quinton's mom visited him this morning. She got to give him a bottle, which he drank all of. He has had his feeding tube out the last 2 days and is doing well without it. He weighs about 6lbs 2 oz now. I have had a fever yesterday and today, so can't go see him until I am feeling better. I am praying he doesn't get sick, because I had gone to see him on Friday.
Today was a "Maya day" as we are calling them. I did not go to the hospital today, which is hard to choose, but instead spent the morning doing something special with Maya and my parents. We showed up at the Kemah boardwalk at 10:30 this morning to find that the rides don't open until noon. Maya patiently waited, walking around, having a snack at starbucks and dancing around with her nana. Then we all took turns going on the carousel, the little airplanes, the hot air balloon wheel and the choo choo train with her. She had a great time and took a long nap this afternoon.
Nico has moved to all of his feedings being bottle or nursing, as of yesterday. He is getting better and hopefully will be rid of his feeding tube this week. It is hard to believe it that on Saturday he will be one month old! He is growing and we are very thankful for all of the progress he has made.
Good news
Today's ultrasound showed a decrease in size of 3 of the 4 ventricles of Nico's brain. This is a great relief to us! They will continue to do ultrasounds to make sure this trend continues.
Today my dad took me to the hospital and they did the ultrasound at noon while I was there. Nico was quiet and cooperative. Then I fed him 24 cc of his bottle, which is the most I've been able to get him to take. He is getting a lot better at eating this week. This is also good news.
Today my dad took me to the hospital and they did the ultrasound at noon while I was there. Nico was quiet and cooperative. Then I fed him 24 cc of his bottle, which is the most I've been able to get him to take. He is getting a lot better at eating this week. This is also good news.
Fun
Took Maya to the park this morning for some fish finding, swinging and dog watching. Then a shot of Nico from a few days ago.
Friday Q and I went to infant CPR training at the hospital. We had a good day together and with Nico. Nico was quite sleepy and I am figuring out that if I want to see more of his eyeballs, I need to be there early in the morning. Today Quinton's mom and I went to the hospital in the morning. He was a hungry boy when I got there and ate better. He woke up and looked around a lot afterward, smiling off and on.
We are becoming anxious about the ultrasound on Monday. We keep praying for good news, but know his head circumference has continued to grow. We are hoping his body will heal and the ventricular fluid will start draining properly. This is the only way that he can avoid surgery.
My dad arrived this morning, driving in from Arizona. Maya is excited to have his attention. Hopefully we will all get to really enjoy our time together, even though it is going to be filled with trips back and forth to the hospital.
We are becoming anxious about the ultrasound on Monday. We keep praying for good news, but know his head circumference has continued to grow. We are hoping his body will heal and the ventricular fluid will start draining properly. This is the only way that he can avoid surgery.
My dad arrived this morning, driving in from Arizona. Maya is excited to have his attention. Hopefully we will all get to really enjoy our time together, even though it is going to be filled with trips back and forth to the hospital.
Pretty baby
Today Nico had pulled out his feeding tube, so I took the opportunity to take some photos before it went back in. Here are a couple. We had a good day together today. He was more alert than yesterday.
After a little thinking about what we were told yesterday I decided to ask the doctor what "not soon" meant in medical time, concerning Nico's ventricular fluid increasing and his possible need for a shunt being put in. I feel quite a bit relieved because he told me that if Nico's fluid continued to increase at the rate it has been on the last 2 ultrasounds, that it would be at least 2 months before he would need any surgical intervention. That gives a lot of time for Nico's body to heal from whatever is blocking the drainage, if it is inflammation or residue from blood clots.
As far as the protein C deficiency (which can allow blood clots to form), the hematologist will want Nico's levels checked again in 3 to 6 months, when there is a more defined range of normal. For now there will be no further treatment for that. So today has been a good day for our family. We are thankful for some good news.
As far as the protein C deficiency (which can allow blood clots to form), the hematologist will want Nico's levels checked again in 3 to 6 months, when there is a more defined range of normal. For now there will be no further treatment for that. So today has been a good day for our family. We are thankful for some good news.
I'm hoping for a good day with Nico. I want to wake him up a bit more while I am there and snuggle. I love to see his eyes and have him smile at me. It is hard to believe he is 3 weeks old today. A couple of days ago I was looking at our first photos, with me unable to touch him and him hooked up to the venthilator. I am so glad that he has come a long way since then. It is so good to hold him against me and to be able to interact with him.
Maya is finger painting at the table this morning, with purple and orange. She really loves to color, paint and play with play dough. She is getting very good at naming all of her colors. Pink and purple are her favorites, of course. I don't know how little girls know to gravitate toward those colors. It must be some genetic predisposition.
Maya is finger painting at the table this morning, with purple and orange. She really loves to color, paint and play with play dough. She is getting very good at naming all of her colors. Pink and purple are her favorites, of course. I don't know how little girls know to gravitate toward those colors. It must be some genetic predisposition.
Nico's CT scan was done at 5am this morning. I spoke with the neurologist this afternoon. They said that his ventricles are enlarging because of the fluid, but that he is not close to needing surgery. They are going to come check on him each day and continue weekly ultrasounds. Please continue to pray with us that this problem goes away, that God heals him so a shunt does not become something he may need placed in his brain.
Nico is a sleepy boy. He didn't want to wake up much for me today, so I decided to leave him to his rest, hoping that it will continue to help him to heal and grow. I did enjoy cudding him a lot while he slept.Today he weighed 5lbs, 6oz.
Nico is a sleepy boy. He didn't want to wake up much for me today, so I decided to leave him to his rest, hoping that it will continue to help him to heal and grow. I did enjoy cudding him a lot while he slept.Today he weighed 5lbs, 6oz.
Ultrasound results
The Fluid level in the center of his brain has increased over the past 3 checks. He is still not at a level close to needing surgery, but they are going to do a CT scan tomorrow and have the nuerologist go over the results. We just have to continue to wait/pray the problem takes care of itself as he matures. Everything is stll up in the air with this fluid increasing, but he is getting the best care from what we are seeing. We will update with results from the CT scan when we get them.
Nico is still doing ok, sorry for the lack of updates. There just has been no real new information for us yet. We are waiting for an ultrasound to be done on Monday to check the fluid build up in his brain. They measure his head size everyday to monitor any swelling. You still would not know he had any issues on the outside as he acts very normal for his age. Which is great. We should do another update when we get any new news or his Ultrasound results. Thanks for all your concern for us and we will keep yall posted.
Today Nico was very bright-eyed and looking all around while he had his bottle. We had a rather long day running around the hospital before getting to spend time with him. Both Quinton and I's blood has been sent off and we will wait for results for our coagulation protein tests.
Maya is understanding that Mommy is going with someone (Daddy, Nana, Grandma, Holly, Jordan) almost every day to the hospital to visit her baby brother. Today she had great fun helping me unpack a big box of baby clothes that Quinton's cousin sent to us. She was quite ready to keep some of the things for herself and her dolls. Maya's verbal skills continue to amaze me. She is becoming such a big girl!
We are waiting again for test results. One test leads to another test in the investigation of the Protein C deficiency. Nico had an ultrasound this morning and results were not quite what we hoped. The fluid has increased slightly in his brain. He will have another ultrasound by Monday to check it again. Please pray with us that the fluid will drain on its own and be absorbed into his body. On a good note, Nico's platelet counts are up to 245,000 which is in the normal range now.
In the last 24 hours Nico has been seen by an ophthalmologist, a hematologist and a developmental specialist. We are so glad he is at Texas Children's where all these people are available so quickly. Not only are they available to see him, but then they make themselves available to come by and explain everything to us, answering any questions we have. The developmental specialist spent almost an hour with me today.
The ophthalmologist said Nico has no clots or abnormalities in his retinas. The hematologist is working to figure out the cause of the Protein C deficiency and they started him on Protein C concentrate infusions yesterday at 5pm. He will get them every 12 hours for a while and they will keep testing his levels until they are able to figure out the dosage that he needs. The developmental specialist had a lot of encouraging things to say. She says from a clinical stand point she cannot tell that any brain hemorrhaging occurred in Nico. He is vocalizing well, has good motor skills in moving his arms, legs and fingers and seems socially interested in what is going on around him. She is recommending that he does receive care from early childhood intervention, a state program that would allow us to have in-home evaluations and free therapy up until age 3. She wants us to have every resource available to us, should we need it down the road.
In the last 24 hours Nico has been seen by an ophthalmologist, a hematologist and a developmental specialist. We are so glad he is at Texas Children's where all these people are available so quickly. Not only are they available to see him, but then they make themselves available to come by and explain everything to us, answering any questions we have. The developmental specialist spent almost an hour with me today.
The ophthalmologist said Nico has no clots or abnormalities in his retinas. The hematologist is working to figure out the cause of the Protein C deficiency and they started him on Protein C concentrate infusions yesterday at 5pm. He will get them every 12 hours for a while and they will keep testing his levels until they are able to figure out the dosage that he needs. The developmental specialist had a lot of encouraging things to say. She says from a clinical stand point she cannot tell that any brain hemorrhaging occurred in Nico. He is vocalizing well, has good motor skills in moving his arms, legs and fingers and seems socially interested in what is going on around him. She is recommending that he does receive care from early childhood intervention, a state program that would allow us to have in-home evaluations and free therapy up until age 3. She wants us to have every resource available to us, should we need it down the road.
Today I was at the hospital from 1pm to 5pm. I got to try to nurse Nico for the first time. He did quite well for his age and I am looking forward to trying again tomorrow. Today Nico weighed 4lbs. 14.1 oz. Nico is doing excellent with his bottles and they expect the feeding tube to come out in the next day or two. His nutritional IV came out this morning, so the feeding tube is the only thing left. Nico's platelet counts have gone up on their own since his last tranfusion. Last Thursday they were 66,000 and on Saturday they were 125,000. We do have an account set up at the gulf coast blood bank and if you'd like to give blood we'd appreciate it, as surgery is still a possibility. He is A+ blood type. The web site is http://www.giveblood.org/ and the phone number is (713) 790-1200. Nico's kidneys seem to have fully recovered from distress.
The blood coagulation tests that have come back so far have all been normal, including the homocysteine gene and the factor 5 leiden. The results of the rest of those tests won't be complete for at least another week.
We got the results from his MRI. Dr. Bhakta sat down with me for over an hour late this afternoon and showed me pictures of the brain and explained all of the terms of everything that happened to Nico's brain right before he was delivered and since. There are a lot of big words (white matter ischemia, intraventricular hemorrhaging, watershed injury, hydrocephalis and punctate hemorraghing on both sides of the brain). As far as monitoring Nico's brain, he will have an ultrasound on Friday and weekly to monitor the fluid in his brain and determine whether it will take care of itself or if he will need to have surgery to drain it. His head circumference is being measure daily and has been growing normally so far. The big takeaway points the doctor said is the at this point our child appears completely normal for any preemie his age. An infant's brain has much more ability to heal itself than an adult brain, as it is still growing. And there is no way to know how much the bleeding has affected him until he grows and we can see whether he is reaching milestones or not. He said any doctor that would try to make predictions would be lying to us. There is no way. The hospital will make every possible resource available to us. He will have a developmental evaluation before he leaves the hospital. Early childhood evaluation will come visit us in our home to check on his progress periodically and will offer any physical and occupation therapy he may need up until age 3. At this point we have still been given no idea as to when he might be able to come home. It all depends on his continued test results and how he continues to do with his bottle/breastfeeding.
I am sorry I cannot tell people all of this in person, but it has taken me almost an hour to type this. It is so complicated and so much information to absorb. We appreciate everyone's love, support and prayers. We will continue to pray for healing for Nico and to trust God for what our future holds.
The blood coagulation tests that have come back so far have all been normal, including the homocysteine gene and the factor 5 leiden. The results of the rest of those tests won't be complete for at least another week.
We got the results from his MRI. Dr. Bhakta sat down with me for over an hour late this afternoon and showed me pictures of the brain and explained all of the terms of everything that happened to Nico's brain right before he was delivered and since. There are a lot of big words (white matter ischemia, intraventricular hemorrhaging, watershed injury, hydrocephalis and punctate hemorraghing on both sides of the brain). As far as monitoring Nico's brain, he will have an ultrasound on Friday and weekly to monitor the fluid in his brain and determine whether it will take care of itself or if he will need to have surgery to drain it. His head circumference is being measure daily and has been growing normally so far. The big takeaway points the doctor said is the at this point our child appears completely normal for any preemie his age. An infant's brain has much more ability to heal itself than an adult brain, as it is still growing. And there is no way to know how much the bleeding has affected him until he grows and we can see whether he is reaching milestones or not. He said any doctor that would try to make predictions would be lying to us. There is no way. The hospital will make every possible resource available to us. He will have a developmental evaluation before he leaves the hospital. Early childhood evaluation will come visit us in our home to check on his progress periodically and will offer any physical and occupation therapy he may need up until age 3. At this point we have still been given no idea as to when he might be able to come home. It all depends on his continued test results and how he continues to do with his bottle/breastfeeding.
I am sorry I cannot tell people all of this in person, but it has taken me almost an hour to type this. It is so complicated and so much information to absorb. We appreciate everyone's love, support and prayers. We will continue to pray for healing for Nico and to trust God for what our future holds.
I know that we are called to testify to each other, as evidence of God’s faithfulness and His grace. I want to now. For everyone that is praying, I know without a doubt that your prayers are being heard and that God is providing for us. Philippians 4:19 says, “And my God will supply all of your needs, according to His riches in glory in Christ Jesus.” And if you’ve ever heard the amplified or message version (or the Becky Riggle amplified version), this is expanded to say He will ABUNDANTLY supply all of our needs.
God has orchestrated things for us, placing people in our lives at the right moments to encourage us, to speak to us and to help us. The workers at Texas Children’s Hospital are amazing and there is no comparison for the level of care and compassion that he (and we) is receiving there. I’ve never before had a Dr. tell me to go eat and he would be waiting to talk to me when I got back.
We are still waiting for the MRI results, but we have been able to put aside fear and worry and find joy in the moments that we are having at the hospital and at home together. We see the progress that Nico has made in getting off medicines for blood pressure and seizures (which Texas Children's has seen no evidence of) and the ventilator. He has been able to digest the breast milk that he has been given thru his feeding tube and those amounts are being increased daily. He was given his first bottle last evening. In a few days, I will probably be able to try to nurse him for the first time.
Today Quinton, Maya and I went to BabiesRUs together. I was excited to shop for Nico because I was on bed rest for so long and didn’t get to do much to prepare for him to come home. My body is healing very well, as far as I am concerned. I am thankful, as I have been pushing myself a bit with all the walking and riding in cars I did this week. Quinton was able this morning to get a whole new wardrobe of pants, which he desperately needed and Maya was as happy and cooperative as you could ever expect any 2 ½ year old to be. She had fun picking out a couple small toys for her brother as well as a new Tinkerbell straw cup for herself.
God has orchestrated things for us, placing people in our lives at the right moments to encourage us, to speak to us and to help us. The workers at Texas Children’s Hospital are amazing and there is no comparison for the level of care and compassion that he (and we) is receiving there. I’ve never before had a Dr. tell me to go eat and he would be waiting to talk to me when I got back.
We are still waiting for the MRI results, but we have been able to put aside fear and worry and find joy in the moments that we are having at the hospital and at home together. We see the progress that Nico has made in getting off medicines for blood pressure and seizures (which Texas Children's has seen no evidence of) and the ventilator. He has been able to digest the breast milk that he has been given thru his feeding tube and those amounts are being increased daily. He was given his first bottle last evening. In a few days, I will probably be able to try to nurse him for the first time.
Today Quinton, Maya and I went to BabiesRUs together. I was excited to shop for Nico because I was on bed rest for so long and didn’t get to do much to prepare for him to come home. My body is healing very well, as far as I am concerned. I am thankful, as I have been pushing myself a bit with all the walking and riding in cars I did this week. Quinton was able this morning to get a whole new wardrobe of pants, which he desperately needed and Maya was as happy and cooperative as you could ever expect any 2 ½ year old to be. She had fun picking out a couple small toys for her brother as well as a new Tinkerbell straw cup for herself.
Well, Nico had a rather traumatic day today, so I decided it was best not to play dress up with him. That means no more photos today. He got a peripheral IV for his nutrition, which took trying in both arms and feet before succeeding. Then his UVC (iv in the umbilical stump) was removed. Next he was taken down to have his MRI done. I was very glad to be there with him to comfort him during all this discomfort. He was quite the trooper and the nurse commented on my ability to stay calm during all of this.
Today Nico gave Maya a Hello Kitty doll. She is very pleased with it. Tomorrow we will let her pick out a toy to take her brother. I think she is going to like being a big sister. She certainly likes being able to take charge. Hopefully Nico will be as easy going as his father and let her have her fun.
I am going to work on getting more than 4 hours of sleep tonight. Wish me luck!
Today Nico gave Maya a Hello Kitty doll. She is very pleased with it. Tomorrow we will let her pick out a toy to take her brother. I think she is going to like being a big sister. She certainly likes being able to take charge. Hopefully Nico will be as easy going as his father and let her have her fun.
I am going to work on getting more than 4 hours of sleep tonight. Wish me luck!
Today Nico got moved from his isolet to a "big boy" crib. He has stayed off any breathing support. Today his platelets were almost 20,000 higher than yesterday, so they are turning in the right direction. He is scheduled for a repeat MRI on his brain at 8am tomorrow, because the scans that Clear Lake Hospital took were not done with the settings needed to see what the doctors needed to see. Today he got double the feeding volume of yesterday and they will continue to increase it daily as long as he is digesting well ( a feeding for him today was a little less than 2 & 1/2 teaspoons). Tomorrow they are going to take out his UVC, which is an IV into his umbilical stump that gives the doctors quick access if he were to need medication. He will be given a peripheral IV to continue to give him nutritional support. A chunk of the blood testing that they started yesterday will have results hopefully by the middle of next week.So today I held him again, just laying on my chest for an hour and a half. It was so nice. I could have stayed there hours more. He was a happy guy to be kept cozy and listen to me hum. Tomorrow when his line comes out we get to put clothes on him for the first time. I am excited to see him all dressed up. There will definitely be more photos posted tomorrow. He smiled at me again today! I think he is going to be a charmer. Given my husband's genes, I am not at all surprised.
I have to say this too, Ronald McDonald houses are really great! The next time you are next to one of those boxes to drop your change in there, know that it is a good charity. Mom and I had lunch there and to have free pizza and freshly baked chocolate chip cookies, while sitting at a dining room table (not a cafeteria table) was a nice break. They even have rooms to take a nap in, which is nice for someone who's just had a c-section. The "house" is right in the middle of the hospital. Also if you're looking for something to do with your free time, volunteers are here who come in to bake the cookies and wash the dishes.
Thank you again to everyone who is continuing to encourage us!
Today Nico is one week old and I got to hold him in my arms for the first time. He felt so small, soft and warm. I cannot wait to do it again! He is off his nasal cannula and breathing completely on his own since 9a.m. Tomorrow they are planning on increasing his breast milk feedings to double the volume they have been the past few days. Soon he may be ready to get his first bottle, but for now he is fed thru the tube that is taped to his cheek that goes up his nose, as well as nutrition called TPN and lipids that are given thru the IV in his umbilical stump. He has a pacifier and is learning to suck on it. I like to help him so he will develop good nursing abilities. Right before I left the hospital Nico was more awake and gave me a couple of sweet smiles with his eyes open. He made my heart melt!!!The results of the tests of my placenta came back and showed a lot of clots on his side of the placenta, none on mine. They have begun a battery of tests to figure out what of many possibilities caused this and is continuing to cause his platelets to disappear. He will probably get platelets again tomorrow. At 3pm they took him for an abdominal ultrasound and to my delight I got to go with him and hold his hands while they did it. The ultrasound technician worked for about 45 minutes and then went to check with the radiologist to make sure they had enough pictures. She had seen spots in his stomach that were curious, so she returned with the radiologist to double-check. The nurse with us from the NICU told them that he hadn't eaten since noon but he was being given lipids through his IV (fats for nutrition). This is what turns out to be the spots she was seeing. So since the radiologist came into the room with us (which doesn't normally happen) I did not have to wait for her to put the formal report in the computer. She told us the arteries in his abdomen look completely normal and his liver, kidneys, gallbladder, pancreas and stomach showed no clots. Good news!
Baby Registry Link
We did a baby registry list of a few things we would like for baby Nico if you are wanting to get us something for him. Click on the above title to go to the babies r us website and our list.
We did a baby registry list of a few things we would like for baby Nico if you are wanting to get us something for him. Click on the above title to go to the babies r us website and our list.
Improving
He was in lvl3 and now he is in his new lvl2 room(4 being the worst). Things seem to be moving in the right direction and TCH is keeping us up to date nicely. Grandma took her up there tonight to visit. Holly is taking Kristina up there tomorrow to see how he is doing in the new room.
Well, this is the first time I've seen all of Q's notes on the page together. It looks like I have good records as I haven't started his actual journal yet and my mind is so full of stuff I can't rememeber anything much right now. My husband is excellent beyond words!
Today was my most exciting day so far, since the day Nico was born. I got to do some "Mommy" things, like rubbing stinky poo off his hiney while he cried because he was so mad! That was our first time hearing him cry. I was so excited I couldn't feel bad for him at all. I've been waiting for that sound since he came out in the delivery room.
Arriving home yesterday, Maya seems like such a grown-up tiny person as she greeted us at the door and shortly afterward told me I needed to go to my bed and rest. She is in much need of hugs and kisses from her mommy, as we have both missed each other. I think she will be so excited when she gets to have her little brother come home! For now we aren't really showing her photos, so she won't be scared of the tubes. I hope to talk to the child life person at the hospital tomorrow about how we can talk to her about everything that is going on.
Thank you to everyone for your prayers, food, errand running, gifts, flowers and messages of concern and encouragement. We are so fortunate to have so much support!
Visiting (added video)
We got to take his tempature(picture below) and change a diaper(video above). He pooped on Kristina so that's a winner. They are still going over the MRI results process so we do not have info now. They are happy with his progress and has been started on breast milk. There was no evidence of seizures in the EEG test.
Back home
**Mom is home now at 12, they have also removed Nico's breathing tube and just have the nasal oxygen in place. All breaths are his own along with no more seizure medication. He is doing fine at tch so far.
Updates
1-2-10
-- as of now he is needing platelets, but not blood. Since clear lake never could set up the donation account we will Have TCH set one up most likely on Monday. Once we get an account set up we will let you know.
6:41pm: Brad O. showed me the way around and he is all set up at TCH now. Kristina spoke with a doctor there and was quite impressed at the difference(much more information) in the conversation. They will look at he MRI today and have a radiologist go over it on Monday. They showed me x-rays and also said he does not need any more blood. They have him under lights to work on his tan now. TCH was surprised when I said he was not under them at Clear Lake.
1:35pm: They are supposed to transfer him at 2 to TCH.
10:40am: We have asked them to transfer him to Texas Childrens Hospital where we hope they will have a doctor available. They did not argue with her so now we await this process. It is patient requested and not doctor requested so there might be complications as they try and keep him.
8:50am: I will re-update this spot when we get some actual results. The MRI was done yesterday at 2pm. No one was available on New Years to look at the scans, but we are told maybe today and for sure before Monday. What we have been told so far is suspected brain damage due to bleeding and suspected seizures. No confirmation of either as no one knows.
1-1-10:
1:18pm: And the roller coaster continues.. We just found out the whole reason they were pushing him so fast to breath on his own is so they can do a MRI to determine if there was any bleeding in his head resulting in suspected brain damage which is causing some of his other organs to not function correctly. We were thinking the progress was good, but now we will not know any results from the MRI till tomorrow supposedly. Kristina will be staying at the hospital till Sunday or Monday now most likely to be close. Apparently God really is the only one who knows what is wrong as everyone else has no idea what is causing or caused this...yet.
10:33am: Kristina just got to go see him actually moving around since they have taken him off the sedative. She also touched him for the first time. The doc will be coming in later to do a checkup. His blood type is A+ and we will be getting some info for blood donation.
12-31-09:He was given red blood cells and platelets today. The respirator is
only breathing 5 of the 60 breaths a minute. Which means he is
breathing quite a bit on his own and maintaining good blood oxygenation!
-- as of now he is needing platelets, but not blood. Since clear lake never could set up the donation account we will Have TCH set one up most likely on Monday. Once we get an account set up we will let you know.
6:41pm: Brad O. showed me the way around and he is all set up at TCH now. Kristina spoke with a doctor there and was quite impressed at the difference(much more information) in the conversation. They will look at he MRI today and have a radiologist go over it on Monday. They showed me x-rays and also said he does not need any more blood. They have him under lights to work on his tan now. TCH was surprised when I said he was not under them at Clear Lake.
1:35pm: They are supposed to transfer him at 2 to TCH.
10:40am: We have asked them to transfer him to Texas Childrens Hospital where we hope they will have a doctor available. They did not argue with her so now we await this process. It is patient requested and not doctor requested so there might be complications as they try and keep him.
8:50am: I will re-update this spot when we get some actual results. The MRI was done yesterday at 2pm. No one was available on New Years to look at the scans, but we are told maybe today and for sure before Monday. What we have been told so far is suspected brain damage due to bleeding and suspected seizures. No confirmation of either as no one knows.
1-1-10:
1:18pm: And the roller coaster continues.. We just found out the whole reason they were pushing him so fast to breath on his own is so they can do a MRI to determine if there was any bleeding in his head resulting in suspected brain damage which is causing some of his other organs to not function correctly. We were thinking the progress was good, but now we will not know any results from the MRI till tomorrow supposedly. Kristina will be staying at the hospital till Sunday or Monday now most likely to be close. Apparently God really is the only one who knows what is wrong as everyone else has no idea what is causing or caused this...yet.
10:33am: Kristina just got to go see him actually moving around since they have taken him off the sedative. She also touched him for the first time. The doc will be coming in later to do a checkup. His blood type is A+ and we will be getting some info for blood donation.
12-31-09:He was given red blood cells and platelets today. The respirator is
only breathing 5 of the 60 breaths a minute. Which means he is
breathing quite a bit on his own and maintaining good blood oxygenation!
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