Back home

**Mom is home now at 12, they have also removed Nico's breathing tube and just have the nasal oxygen in place. All breaths are his own along with no more seizure medication. He is doing fine at tch so far.

Updates

1-2-10
-- as of now he is needing platelets, but not blood. Since clear lake never could set up the donation account we will Have TCH set one up most likely on Monday. Once we get an account set up we will let you know.
6:41pm: Brad O. showed me the way around and he is all set up at TCH now. Kristina spoke with a doctor there and was quite impressed at the difference(much more information) in the conversation. They will look at he MRI today and have a radiologist go over it on Monday. They showed me x-rays and also said he does not need any more blood. They have him under lights to work on his tan now. TCH was surprised when I said he was not under them at Clear Lake.

1:35pm: They are supposed to transfer him at 2 to TCH.
10:40am: We have asked them to transfer him to Texas Childrens Hospital where we hope they will have a doctor available. They did not argue with her so now we await this process. It is patient requested and not doctor requested so there might be complications as they try and keep him.


8:50am: I will re-update this spot when we get some actual results. The MRI was done yesterday at 2pm. No one was available on New Years to look at the scans, but we are told maybe today and for sure before Monday. What we have been told so far is suspected brain damage due to bleeding and suspected seizures. No confirmation of either as no one knows.

1-1-10:
1:18pm: And the roller coaster continues.. We just found out the whole reason they were pushing him so fast to breath on his own is so they can do a MRI to determine if there was any bleeding in his head resulting in suspected brain damage which is causing some of his other organs to not function correctly. We were thinking the progress was good, but now we will not know any results from the MRI till tomorrow supposedly. Kristina will be staying at the hospital till Sunday or Monday now most likely to be close. Apparently God really is the only one who knows what is wrong as everyone else has no idea what is causing or caused this...yet.

10:33am: Kristina just got to go see him actually moving around since they have taken him off the sedative. She also touched him for the first time. The doc will be coming in later to do a checkup. His blood type is A+ and we will be getting some info for blood donation.

12-31-09:He was given red blood cells and platelets today. The respirator is
only breathing 5 of the 60 breaths a minute. Which means he is
breathing quite a bit on his own and maintaining good blood oxygenation!

Stable, critical.

We are looking at him now. He should be on this ventilator for 3-5 days. So unless anything changes this should be his status for awhile.

Her brother Nico

Mom is(was) in room 325 at Clear Lake Regional Hospital.
Nico is 5# 18.5" 12-30-09 1:56pm

The story so far: Kristina didn't feel him kicking as much so she went to the doctor at around 9am Wednesday. Vitals looked ok but he was not very active so to find out more she was sent to the hospital for a 24hour monitor. So now it's around 1pm and the nurses etc. leave with some of the info the machines are spitting out. They return at 1:10 and start having her fill out delivery papers and we are a bit curious at this point what is going on with the baby. Luckily these phones have cameras in them.

As she is filling them out they tell us we are going to Labor and Delivery to have a c section! The baby wanted out really bad, yet her body was not ready to deliver at all. They wheel her out at 1:37
.
I am sent to get dressed for the op room and now it is 1:47

When they bring me in to see her she is already in the procedure and at 1:56 Nico is out and they are working on him.

He was due on February 20 so his lungs are not quite ready for the world which is normal. There are other complication he is having with breathing and has been fully sedated and on a breathing machine as they work on stabilizing his condition.

We were told he would have died for sure if Kristina had waited another day before coming in. Persistent Pulmonary Hypertension is one of his issues right now. His condition has been critical and still is at the time of this post. We are praying he takes to all the medication and his body starts to change for the better. Thank you all for your help we are blessed with great friends and family and we really do appreciate it.

Christmas Performance "Reindeer Pokey"


She did quite a bit more this year than last year.